MB530 Posted May 2, 2021 Share Posted May 2, 2021 Appreciate the updates, keep us posted, hope it all goes as well as possible. Quote Link to comment Share on other sites More sharing options...
blackcat20 Posted May 2, 2021 Share Posted May 2, 2021 That's great news. Quote Link to comment Share on other sites More sharing options...
CrankyM Posted May 3, 2021 Share Posted May 3, 2021 Such great news! I was expecting baby news too. Keep growing nicely baby girl. Quote Link to comment Share on other sites More sharing options...
Disydo Posted May 13, 2021 Author Share Posted May 13, 2021 Hi everyone!Our DD was born this Monday the 10th, at 37 weeks, a couple of days before her planned c-section. She ended up being delivered early because of a bad scan and much reduced movements. But she's here now! She weighed 2.31 kgs at birth and is doing really well. We're both still in hospital, she's in the special care nursery, not sure when she'll be able to come home, all depends on how she goes with her feeding. They're managing to up the feeds so if they can keep doing that then she might be able to come home with me on the weekend, which would be great. She's sucking well, maintaining her temperature, and no longer needs to be on the oxygen and heart rate monitor.She had an ultrasound of her heart last night which showed both good and bad news. Good news is that her aorta is a good size and won't be causing any problems - which is great, as that can be quite dangerous. Less good news is that the VSD is quite big and will almost definitely require surgery, possibly in a month, possibly longer, but we'll know more as the weeks go on. That's disappointing but not unexpected and I'm feeling okay about it.I felt so completely overwhelmed when I first wrote this post and I really appreciate all of your comments and support. They've been immensely helpful, thank you so much. For now, I'm going to enjoy the stress of the pregnancy being over (and never having to do it again) and enjoying the time with the new baby. I'm looking forward to brining her home to her brother.Disy xox Quote Link to comment Share on other sites More sharing options...
riotproof Posted May 13, 2021 Share Posted May 13, 2021 Congratulations disy! How wonderful she held on so long, and such an excellent weight. My daughter weighed that when she came home after a month in hospital. I hope you get your questions answered about the surgery, it all sounds so very positive, but I know you must have feelings. Best of luck. Quote Link to comment Share on other sites More sharing options...
Silverstreak Posted May 13, 2021 Share Posted May 13, 2021 Congratulations [mention]Disydo[/mention]! Quote Link to comment Share on other sites More sharing options...
Beanette Posted May 13, 2021 Share Posted May 13, 2021 Congratulations [mention]Disydo[/mention] ! Welcome to your sweet baby girl xx Quote Link to comment Share on other sites More sharing options...
Blueskies12 Posted May 13, 2021 Share Posted May 13, 2021 Congratulations Disydo! Enjoy your beautiful baby girl! It must feel great to know that she is here and safe Earth side. Quote Link to comment Share on other sites More sharing options...
onetrick Posted May 13, 2021 Share Posted May 13, 2021 Congratulations! What a mix of emotions you must be feeling! I hope.that you can bring her home this weekend x Quote Link to comment Share on other sites More sharing options...
LifesGood Posted May 13, 2021 Share Posted May 13, 2021 Congrats [mention]Disydo[/mention] on the arrival of your little girl. Thanks for updating, its a relief to hear she is safely arrived and that you can relax somewhat. Hoping all goes as smoothly as possible for her. Quote Link to comment Share on other sites More sharing options...
Sancti-claws Posted May 13, 2021 Share Posted May 13, 2021 Congratulations!!! Quote Link to comment Share on other sites More sharing options...
Prancer Posted May 13, 2021 Share Posted May 13, 2021 Congratulations! So glad she is came safely into the world. You did so well holding on to her and growing her until 37 weeks. Well done!Sounds like the doctors are onto everything. Enjoy your newborn time, let the doctors tell you what needs to be done and just focus in on your Bub. Take care. Quote Link to comment Share on other sites More sharing options...
banyan Posted May 13, 2021 Share Posted May 13, 2021 Congratulations! Quote Link to comment Share on other sites More sharing options...
BECZ Posted May 13, 2021 Share Posted May 13, 2021 Congratulations [mention]Disydo[/mention]!Fingers crossed that you can take her home on the weekend! Quote Link to comment Share on other sites More sharing options...
ineedmorecoffee Posted May 13, 2021 Share Posted May 13, 2021 Congratulations, glad you made it to 37 weeks. Quote Link to comment Share on other sites More sharing options...
ClaudiaCosette Posted May 13, 2021 Share Posted May 13, 2021 Big congratulations on your beautiful girl! She is a nice size and I'm glad to hear things are going well. I know you are still worried about the surgery, but I hope she continues to do well and get bigger and you get her home soon. Quote Link to comment Share on other sites More sharing options...
Bethlehem Posted May 14, 2021 Share Posted May 14, 2021 Congratulations and welcome little one. Sounds like she’s going so well! Quote Link to comment Share on other sites More sharing options...
blackcat20 Posted May 14, 2021 Share Posted May 14, 2021 Congratulations Quote Link to comment Share on other sites More sharing options...
MB530 Posted May 14, 2021 Share Posted May 14, 2021 Congratulations on your daughter’s safe arrival. Assume you are linked into heart kids already for support. My youngest had an AVSD repaired at 3 months and has no ongoing heart issues, follow up scans over 11 years have always apparently consistently shown a “very small leak” whatever that might mean but she has not had any further heart problems/issues and the scar that was very visible has faded so it’s barely noticeable and her quite misshapen chest/rib area which used to concern me for several years after surgery has completely evened out beautifully as she has grown. Good Luck with everything. Quote Link to comment Share on other sites More sharing options...
CrankyM Posted May 14, 2021 Share Posted May 14, 2021 Congratulations [mention]Disydo[/mention] She's a very nice weight and it's good to hear she is doing well. It sounds like the doctors are right onto it all and you are in good hands. A good friend of mine had a similar repair on her daughter at 4 months and you would barely know it now. She's active and sporty, all her ongoing scans are good and she's absolutely thriving. Quote Link to comment Share on other sites More sharing options...
Redchick Posted May 16, 2021 Share Posted May 16, 2021 Congratulations [mention]Disydo[/mention]! Well done for making it to 37 weeks and what a great weight! Hoping you’ve been able to take bub home this weekend and can enjoy some quiet family time. I’m so glad you have great support from your medical staff and the (once again) amazing members here who have been through similar situations. Quote Link to comment Share on other sites More sharing options...
Disydo Posted May 17, 2021 Author Share Posted May 17, 2021 Thanks so much for all the lovely wishes and congratulations!I’m at home now but unfortunately baby has had to stay in hospital as she’s not feeding well because she’s so small. She’ll probably be in all this week - hopefully she puts on lots of weight and we can take her home soon. Quote Link to comment Share on other sites More sharing options...
riotproof Posted May 18, 2021 Share Posted May 18, 2021 Disydo, that is so hard. I hope she puts on enough weight this week. Quote Link to comment Share on other sites More sharing options...
Disydo Posted May 20, 2021 Author Share Posted May 20, 2021 Thanks so much everyone. A lot has happened since I last wrote. DD is still in hospital as unfortunately her VSD is affecting much more than expected at this early stage. She'll be having surgery at the royal children's in the next two or three weeks (we'll be given a date soon). Until then she'll stay in the special care nursery. She's been doing much better since being put on diuretics yesterday and is much more alert and happy. She's able to take a bottle feed every third feed, the others are tube feeds. So she'll be in hospital for quite a few weeks. It's obviously difficult but I'm glad that we now have a timeline for the surgery and for when she might be home. Quote Link to comment Share on other sites More sharing options...
Bornagirl Posted May 20, 2021 Share Posted May 20, 2021 Hang in there. I didn't see your thread until after she'd been born, but look forward to your positive updates. Quote Link to comment Share on other sites More sharing options...
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