Jenflea Posted March 10, 2021 Share Posted March 10, 2021 And OP, you haven't failed her. You saw an issue and did your best to get her seen. Sadly waiting lists (even private) can be ridiculous these days. Quote Link to comment Share on other sites More sharing options...
Bornagirl Posted March 10, 2021 Share Posted March 10, 2021 My daughter has grown about another 5cm in the two years since she got her period, versus about 25cm in the two years before. VeritasVinumArte you are right about the percentiles, DD was always on or just above the 75th % and at 14.5 she has finished growing (I think) smack bang on the 75th. OP you are doing everything you can and I hope the scan results bring some optimistic news. Donāt be afraid to be the squeaky wheel but it really sounds like your dr is on the case.Ā When my daughter was a teenager, I remember seeing the projections for height. This one was for girls, and only having one girl I didn't look at the boy ones. From about 10 - 18, there were two different projections to end up at about the same height, and she very much tracked on the lower one, reaching about 171cm in the end, yet was (class wise) at the short end for most of early secondary. Her cousin on the other hand, exact same height now, was that height by year seven. Quote Link to comment Share on other sites More sharing options...
acidulous osprey Posted March 11, 2021 Share Posted March 11, 2021 The anecdata in this thread is pretty much not relevant with all due respect. It's when the growth percentile goes under 1% you're looking at intervention. We went through a few years of DS1 bouncing between the first percentile, third percentile and not even on the chart percentile. He was followed closely with bloods and xrays and we came close to needing growth hormone but he never sustained the first percentile for long enough to qualify and his puberty markers were not precocious.Hilariously (anecdata alert) he's 6 foot now. We were told 5 foot 5 at most but he suddenly had a huge pubertal spurt and went from being this tiny little guy to a large guy. Of course now she's transitioning she's bitter she didn't stay tiny!Good luck with it, I found once we were in the endo system the care was great. Quote Link to comment Share on other sites More sharing options...
Kreme Posted March 11, 2021 Share Posted March 11, 2021 The anecdata in this thread is pretty much not relevant with all due respect. It's when the growth percentile goes under 1% you're looking at intervention. We went through a few years of DS1 bouncing between the first percentile, third percentile and not even on the chart percentile. He was followed closely with bloods and xrays and we came close to needing growth hormone but he never sustained the first percentile for long enough to qualify and his puberty markers were not precocious.Hilariously (anecdata alert) he's 6 foot now. We were told 5 foot 5 at most but he suddenly had a huge pubertal spurt and went from being this tiny little guy to a large guy. Of course now she's transitioning she's bitter she didn't stay tiny!Good luck with it, I found once we were in the endo system the care was great.Ā The OP has said her daughter has jumped a couple of percentiles due to precocious puberty, so I assume sheās around the 25th percentile now. The issue is that she may only have another six months of growing unless she receives medical intervention. If they were to wait until she hit the magic 1% mark it may be too late to do anything as puberty may be complete. Totally different to your situation which was a small child not yet in puberty. Quote Link to comment Share on other sites More sharing options...
Tinsel Posted March 11, 2021 Share Posted March 11, 2021 OP, like a pp suggested, ask the paediatrician if they will call the endocrinologist to get you in asap. It can work wonders. Quote Link to comment Share on other sites More sharing options...
Jerry Posted March 11, 2021 Share Posted March 11, 2021 My DD got her period at 10. I had noticed pubertal changes when she was not quite 9.She has grown slightly since then, but is still under 150cm. Both her dad and I are not tall and she was born prematurely, so combined with early puberty she didn't stand a chance.She definitely will be able to buy from kids or adult wear all her life. Doctor originally told me she was on the very early side of normal puberty age.Hope you get an appointment soon OP. Quote Link to comment Share on other sites More sharing options...
Chillipeppers Posted March 11, 2021 Author Share Posted March 11, 2021 My DD got her period at 10. I had noticed pubertal changes when she was not quite 9.She has grown slightly since then, but is still under 150cm. Both her dad and I are not tall and she was born prematurely, so combined with early puberty she didn't stand a chance.She definitely will be able to buy from kids or adult wear all her life. Doctor originally told me she was on the very early side of normal puberty age.Hope you get an appointment soon OP.Ā This sounds like my dd situation. Iāll let you all know how I go. Hoping to hear from the pediatrician today as I called and left a message with reception that results should be in today. Iām going to ask the pediatrician if he can call and book in for me to speed up the process. Quote Link to comment Share on other sites More sharing options...
Chillipeppers Posted March 11, 2021 Author Share Posted March 11, 2021 The anecdata in this thread is pretty much not relevant with all due respect. It's when the growth percentile goes under 1% you're looking at intervention. We went through a few years of DS1 bouncing between the first percentile, third percentile and not even on the chart percentile. He was followed closely with bloods and xrays and we came close to needing growth hormone but he never sustained the first percentile for long enough to qualify and his puberty markers were not precocious.Hilariously (anecdata alert) he's 6 foot now. We were told 5 foot 5 at most but he suddenly had a huge pubertal spurt and went from being this tiny little guy to a large guy. Of course now she's transitioning she's bitter she didn't stay tiny!Good luck with it, I found once we were in the endo system the care was great.Thanks for telling me what you went through. I donāt think this is the same situation though as my dd has already started puberty and is in the very last stages of it. This is time sensitive and she hasnāt had a chance to finish growing. I think intervention is needed. Quote Link to comment Share on other sites More sharing options...
VeritasVinumArte Posted March 11, 2021 Share Posted March 11, 2021 [mention]acidulous osprey[/mention] actually what is under consideration of OP is NOT growth hormones but puberty blockers. It is looking at the role of advanced puberty with finishing growing. As I said I had a son with a chronological age of 12yrs with a puberty stage age of 15/16 with similar 15yo growth plate age. On the other hand my second child had a chronological age of 12, a puberty age of 15 but his growth plates age of 12.5.Puberty blockers are different to growth hormones and are given for different reasons. Quote Link to comment Share on other sites More sharing options...
Chillipeppers Posted March 12, 2021 Author Share Posted March 12, 2021 Pediatrician has contacted me and told me he will be calling westmead himself to get my dd seen. Now I need to wait for them to call me with an appointment time. Thanks everyone. Quote Link to comment Share on other sites More sharing options...
humblebumble Posted March 30, 2021 Share Posted March 30, 2021 Gosh, I feel so bad this is my daughter & nothing was ever brought up, she's 11 now and def in stage 5, her huge growth spurt was the previous 12mths, she's tiny if she doesn't grow anymore & she won't reach 5ft unless something dramatic changes. She has a lot of other serious medical issues so her growth was the last thing on anyones minds & we just keep telling her someone has to be little & she's pretty special, I'm not that tall either but not as bad.I hope you get the results you all want. <3 Quote Link to comment Share on other sites More sharing options...
Chillipeppers Posted March 30, 2021 Author Share Posted March 30, 2021 [mention]humblebumble[/mention] donāt feel bad, as you said she had other medical issues which trump height, we are all doing the best we can. Itās hard when things donāt go to plan. We finally have an appointment date. Itās a month from today so hopefully we have caught it on time to do something about it. Quote Link to comment Share on other sites More sharing options...
Chillipeppers Posted May 21, 2021 Author Share Posted May 21, 2021 Just an update. We went to see the endocrinologist and she doesnāt recommend injections as she will only gain 2 cm from them and they will need to be administered for 2 years. It seems a bit excessive for only 2cm. With that decision made, it means my dd will get her period by the end of the year. The dr did confirm she will reach roughly 150cm and we are happy with that. She requested an mri and ultrasound to see if anything else is going on and the mri has discovered that she has something called chiari malformation type 1. I have been googling and i know I shouldnāt but now that I have, I am petrified. The dr confirmed that this can bring on early puberty and has referred us back to the paediatrician who will now possibly make us go see a neurosurgeon. We now wait until august for more information. I promise I will try keep away from google. Quote Link to comment Share on other sites More sharing options...
Seayork2002 Posted May 21, 2021 Share Posted May 21, 2021 I see a endocrinologist in Sydney if you would like details PM me but not sure if she is only for adults or sees children as well Quote Link to comment Share on other sites More sharing options...
Chillipeppers Posted May 21, 2021 Author Share Posted May 21, 2021 I see a endocrinologist in Sydney if you would like details PM me but not sure if she is only for adults or sees children as wellĀ Thanks but we have already seen an endocrinologist at westmead. She is now referring us to a neurosurgeon because of the incidental finding in the mri. Quote Link to comment Share on other sites More sharing options...
Seayork2002 Posted May 21, 2021 Share Posted May 21, 2021 I see a endocrinologist in Sydney if you would like details PM me but not sure if she is only for adults or sees children as wellĀ Thanks but we have already seen an endocrinologist at westmead. She is now referring us to a neurosurgeon because of the incidental finding in the mri.Ā sorry I clicked on the link by accident and saw the word endocrinologist, I saw mine for my pituitary glandhope it all goes ok Quote Link to comment Share on other sites More sharing options...
Chillipeppers Posted May 21, 2021 Author Share Posted May 21, 2021 I see a endocrinologist in Sydney if you would like details PM me but not sure if she is only for adults or sees children as wellĀ Thanks but we have already seen an endocrinologist at westmead. She is now referring us to a neurosurgeon because of the incidental finding in the mri.Ā sorry I clicked on the link by accident and saw the word endocrinologist, I saw mine for my pituitary glandhope it all goes okAll good. Thanks. The mri was to check her pituitary gland and that was ok. Quote Link to comment Share on other sites More sharing options...
VeritasVinumArte Posted May 21, 2021 Share Posted May 21, 2021 [mention]Chillipeppers[/mention] glad you have some answers. I am only 150cm.... I was never tall so am just used to everyone over 4th grade being taller than me. Scary about the accidental find on the MRI but hopefully the neurologist will be more reassuring. Quote Link to comment Share on other sites More sharing options...
Chillipeppers Posted May 21, 2021 Author Share Posted May 21, 2021 @Chillipeppers glad you have some answers. I am only 150cm.... I was never tall so am just used to everyone over 4th grade being taller than me. Scary about the accidental find on the MRI but hopefully the neurologist will be more reassuring.150cm is not tall but itās also not too short so we are happy with that. I donāt know much about chiari type 1 so hopefully in august we get some answers because google is scaring me. Quote Link to comment Share on other sites More sharing options...
Lesley225 Posted May 21, 2021 Share Posted May 21, 2021 I'm only 5'1" yes short but livable. Yes the other news is a bit scary but they know about it now so hopefully can stop anything bad from happening. Quote Link to comment Share on other sites More sharing options...
Silverstreak Posted May 21, 2021 Share Posted May 21, 2021 All the best for August Chillipeppers. I am short myself (just on or under five foot) and it hasn't held me back in any way (except having to get my pants and sleeves taken up). I keep a footstool in the kitchen for when DH isn't around to get things on the top shelf of the pantry, but that's about it. Quote Link to comment Share on other sites More sharing options...
Fruitmincepies Posted May 21, 2021 Share Posted May 21, 2021 All the best for August Chillipeppers. I am short myself (just on or under five foot) and it hasn't held me back in any way (except having to get my pants and sleeves taken up). I keep a footstool in the kitchen for when DH isn't around to get things on the top shelf of the pantry, but that's about it.Ā The supermarket gets me! Sometimes I have to hang around in an aisle waiting for someone tall enough to get something off a top shelf for me, especially if itās pushed to the back a bit (and Iām 160!) Quote Link to comment Share on other sites More sharing options...
VeritasVinumArte Posted May 21, 2021 Share Posted May 21, 2021 [mention]Fruitmincepies[/mention] I ask the tall old ladies to get things down for me. Quote Link to comment Share on other sites More sharing options...
Lesley225 Posted May 22, 2021 Share Posted May 22, 2021 All the best for August Chillipeppers. I am short myself (just on or under five foot) and it hasn't held me back in any way (except having to get my pants and sleeves taken up). I keep a footstool in the kitchen for when DH isn't around to get things on the top shelf of the pantry, but that's about it.Ā The supermarket gets me! Sometimes I have to hang around in an aisle waiting for someone tall enough to get something off a top shelf for me, especially if itās pushed to the back a bit (and Iām 160!)Ā Me too, i've a top shelf kind of girl Can hardly do a shop without needing help, but people are very kind. Quote Link to comment Share on other sites More sharing options...
Popular Post Chillipeppers Posted May 15, 2022 Author Popular Post Share Posted May 15, 2022 Not sure if anyone remembers but my daughter started puberty early. She got her period today . She is two months away from being 10. She seems ok and Iām glad I took the time to prepare her but she is still so small. I really didnāt think it would happen so soon but we are here and Iām glad I took the time to find suitable pads for her. Libra have a āgirlsā product that are for smaller girls and they seem to be suitable for her size.Ā 2 16 Quote Link to comment Share on other sites More sharing options...
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