Quitting CPAP

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LunaFreya
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#26

I had a chat to my gp. She was very sympathetic. She’s going to have a chat to the clinic and get back to me.

I mentioned that if I didn’t have to pay so much for the machine I’d be more prepared to give it a go. And if I was getting a noticeable benefit I’d be sticking with it. But with both she said she understood why I stopped.

Centrelink have cut my payments because I’m working and they’re going to continue to do so. It really sucks as I wanted to get my own place and now I don’t see how.
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Meepy
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#27

Has anyone mentioned a splint to you? This keeps your mouth open and is similar to a mouth guard. Cheaper and less intrusive but not as effective for severe sleep apnea. I used one until I had my jaw broken and brought forward - this got rid of my sleep apnea as it was structural so may be another option.
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Silverstreak
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#28

Paddlepop wrote: Tue Feb 16, 2021 3:48 pm Silverstreak: What humidity level do you have your machine set to? I tease DH that he likes his set to humid rainforest because his is 5, and he teases me that I like a desert because mine is 2. Forest or desert for you?
I'm not sure, I'll get back to you on that one!
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Princess Peach
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#29

The machine my dad has can be monitored remotely & the clinic can just log on in & do adjustments as needed.

It paid for by DVA, so it cannot be too fancy pants.
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Paddlepop
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#30

PP: Mine can be monitored remotely. I think it might be pretty standard these days.
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MyOMy
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#31

As others have suggested, all machines are not created equal. Get a new sleep study done and trial a new machine and see if it works better for you, if it doesn’t work try a different one and so on. Perhaps speak to your GP and formulate a plan to help manage your anxieties until your sleep apnoea is better managed.

Hopefully you find a solution that works for you quickly, it’s such a dangerous condition you really don’t want to go too long untreated.
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Pip
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#32

I understand the anxiety but you have a child who needs you to not die in your sleep - sounds harsh but could be a reality without CPAP
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spr_mdn
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#33

Meepy wrote: Tue Feb 16, 2021 4:55 pm Has anyone mentioned a splint to you? This keeps your mouth open and is similar to a mouth guard. Cheaper and less intrusive but not as effective for severe sleep apnea. I used one until I had my jaw broken and brought forward - this got rid of my sleep apnea as it was structural so may be another option.
This was going to be my question too.
If you get claustrophobic, I understand it must be really hard to sleep with something on your face. In saying that, sleep apnoea (especially if severe) is risky to ignore. It can cause you serious harm.
I don't understand why you weren't offered a consultation after the home study. The limited experience I have - the home study is just a preliminary study to identify if apnoeas are happening - the overnight sleep clinic study is where they sort out how mild or severe your condition is, and that's to be followed up by a couple of consultations to get the machine settings or whatever your treatment (modified sleep positions/splints/blah blah) is right. I think you need more follow up and support to get things right before you risk not using cpap.
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Kiwi Bicycle
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#34

Unfortunately one of the big players in the market are doing a crummy job. DH saw a sleep specialist and he's livid with this company and how they recruited chemists to do these " at home sleep studies". How can being sent home with a loan machine and some instructions do what a 2 day sleep study ( one night to monitor and assess, the 2nd night to try and tune the equipment) does?
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