banyan Posted May 12, 2021 Share Posted May 12, 2021 You are in the country now? Is there still ragweed or canola in bloom, or maybe the pollens still resting on window sills etc? Quote Link to comment Share on other sites More sharing options...
Ozgirl Posted May 12, 2021 Author Share Posted May 12, 2021 You are in the country now? Is there still ragweed or canola in bloom, or maybe the pollens still resting on window sills etc? I was, when this happened. Im back in sydney this week. Although heading back on Friday. Quote Link to comment Share on other sites More sharing options...
Princess Peach Posted May 13, 2021 Share Posted May 13, 2021 You are in the country now? Is there still ragweed or canola in bloom, or maybe the pollens still resting on window sills etc? Ragweed spores were the culprit of the massive thunderstorm asthma episode in Victoria the other year - nasty stuff actually. Quote Link to comment Share on other sites More sharing options...
Ozgirl Posted October 15, 2021 Author Share Posted October 15, 2021 So this has been bubbling along in the background. I have been meaning to update. No real answers as yet. I do have para proteins in my blood which means im at risk of MGUS, which means that I am at risk of Multiple myeloma (which just quietly my grandmother has and could only be treated with chemo tablets for 2 years and now its just a waiting period for it to kill her... so just a wee bit scary) Anyway I have had a few flare ups over winter, the last 3 I had, had a loose correlation to wheat. So cut it completely. I also had a telehealth follow up with the Immunologist on tuesday. That was my 3rd appt, she didnt have any of my bloods (she asked for bloods anytime I had a flare up. I went to great lengths to do this) she didnt have notes that my GP called her after the 3rd flare up in Sept and spoke to the Registar So I feel like I am getting nowhere, she did agree to send bloods for wheat allergy testing. But this morning I had another flare up. No wheat, and because of IVF I am on prednisone - so everyone was confused. I have also been taking antihistamines daily since May. The newest suggestion is Rosacea. I was sceptical but he gave me Metronidazole to try. Bloody private script!!! Anyway it has actually calmed down a lot! 5 Quote Link to comment Share on other sites More sharing options...
Popular Post Ozgirl Posted November 24, 2021 Author Popular Post Share Posted November 24, 2021 Well fuck me... I might have a crazy explanation for some of my issues of late. Im once again on a break from IVF so had the brilliant idea to see a knee surgeon about fixing my ACL (this was a few years ago. Just shy of 12 months prior to the infamous heel click). While I was there I was going to ask him to remove the pins from the tib/fib fracture surgery. He says 'of course' but then goes on to ask why I have waited so long to have the pins removed. As he expects them to be removed after 12 weeks. (Even though he is not normally an ankle guy). He then proceeds to explain that he suspects the pain is because the pins may have snapped off, sends me for an xray immediately to check. Me all excited, o look the pins havent broken. But I dont think they should have moved... He says 'yep, they should not have moved and one of the more common reasons is because there is an infection in the bone'. Holy shit!! I burst into tears. This is a big deal. I have been sick for months. And whilst im not sure it explains the autoimmune stuff and rashes and urticaria, it potentially explains the reason my inflammatory markers have been all over the shop. Which has been a concern of my FS and is potentially why my IVF (repeated implantation failure) has not been working. 1 14 Quote Link to comment Share on other sites More sharing options...
MissHLH Posted November 24, 2021 Share Posted November 24, 2021 Wow, I’m glad that it’s been detected. It could play a role in presenting with autoimmune symptoms. And certainly the inflammatory markers. So when are they coming out? 1 Quote Link to comment Share on other sites More sharing options...
Ozgirl Posted November 24, 2021 Author Share Posted November 24, 2021 Hopefully in a couple of weeks. He will call me when the pathology comes back. (More bloods... apparently im getting scar tissue. Cause I only have one good arm ) likely friday. And then a plan, but we talked about the 13th dec for surgery. 2 Quote Link to comment Share on other sites More sharing options...
MintyBiscuit Posted November 24, 2021 Share Posted November 24, 2021 How frustrating that the pins coming out weren’t mentioned earlier, that’s really poor form. I hope this gets you some proper answers Quote Link to comment Share on other sites More sharing options...
Ozgirl Posted November 24, 2021 Author Share Posted November 24, 2021 Compare the pair. 1 5 Quote Link to comment Share on other sites More sharing options...
Ozgirl Posted November 24, 2021 Author Share Posted November 24, 2021 2 minutes ago, MintyBiscuit said: How frustrating that the pins coming out weren’t mentioned earlier, that’s really poor form. I hope this gets you some proper answers Yes! i had a post surgery check up at 3 and 6 weeks. The were the ones who suggested I get the pins removed 'if I want to' when I have the ACL repair! Quote Link to comment Share on other sites More sharing options...
Kiwi Bicycle Posted November 24, 2021 Share Posted November 24, 2021 Screws and pins coming out is a bit of a controversial topic as such. Some people are told they have to come out and like me ( a plate and 11 screws) are told they are with us for life. Different doctors say different things.. I guess I am lucky I have had more X-rays and scans a few years after they inserted, so have had a check to see no issues. So don't feel bad about not getting them out sooner. Even doctors don't agree, Cross fingers it helps. 1 1 Quote Link to comment Share on other sites More sharing options...
Wolf87 Posted November 24, 2021 Share Posted November 24, 2021 What massive news. Hopefully this is the start of better health! 4 Quote Link to comment Share on other sites More sharing options...
Ozgirl Posted November 24, 2021 Author Share Posted November 24, 2021 53 minutes ago, Kiwi Bicycle said: Screws and pins coming out is a bit of a controversial topic as such. Some people are told they have to come out and like me ( a plate and 11 screws) are told they are with us for life. Different doctors say different things.. I guess I am lucky I have had more X-rays and scans a few years after they inserted, so have had a check to see no issues. So don't feel bad about not getting them out sooner. Even doctors don't agree, Cross fingers it helps. Yes that’s what I thought. when I called my mum I gave her permission to say ‘I told you so’. She has been adamant they should be out for a while. Particularly when I had a few episodes of be in a LOT of pain in my ankle. I put myself to bed one night at about 6pm… it was that bad. Quote Link to comment Share on other sites More sharing options...
Pip Posted November 24, 2021 Share Posted November 24, 2021 @Ozgirl do you happen to take proton pump inhibitors??? They have being associated with causing utricaria Quote Link to comment Share on other sites More sharing options...
Ozgirl Posted November 24, 2021 Author Share Posted November 24, 2021 47 minutes ago, Pip said: @Ozgirl do you happen to take proton pump inhibitors??? They have being associated with causing utricaria No, well I dont think so! Have no idea what they are. Quote Link to comment Share on other sites More sharing options...
Fruitmincepies Posted November 24, 2021 Share Posted November 24, 2021 5 minutes ago, Ozgirl said: No, well I dont think so! Have no idea what they are. For heartburn/reflux Quote Link to comment Share on other sites More sharing options...
Ozgirl Posted November 24, 2021 Author Share Posted November 24, 2021 Nope. No heartburn here Quote Link to comment Share on other sites More sharing options...
Ozgirl Posted December 13, 2021 Author Share Posted December 13, 2021 Im sitting here in the hospital waiting for my surgery. This is cruel, I have been up since 7am for 930 admission and still waiting. It lunch time im starving! LOL And I watching people go through that have been her less time than me. Attractive! 5 Quote Link to comment Share on other sites More sharing options...
Ozgirl Posted December 13, 2021 Author Share Posted December 13, 2021 LOL, someone just got up and complained that hes been here 2hrs.. Mate I have been here 2.5hrs. 1 Quote Link to comment Share on other sites More sharing options...
Ozgirl Posted December 13, 2021 Author Share Posted December 13, 2021 Wow he is laying the boot in. 1. Blah blah blah... And 2. (Like he number his complaints...) 2 Quote Link to comment Share on other sites More sharing options...
Mooguru Posted December 13, 2021 Share Posted December 13, 2021 2 hours ago, Ozgirl said: Wow he is laying the boot in. 1. Blah blah blah... And 2. (Like he number his complaints...) It can probably all be narrowed down to hangry. Good luck 2 Quote Link to comment Share on other sites More sharing options...
Wolf87 Posted December 13, 2021 Share Posted December 13, 2021 All the best, hope it all goes well! Are you having the repair AND pins coming out? Quote Link to comment Share on other sites More sharing options...
Fruitmincepies Posted December 13, 2021 Share Posted December 13, 2021 Waiting is the worst. I remember once waiting most of the day, me and one other woman and neither of us were able to sit comfortably in the chairs provided. We ended up being moved to a room so we could lie down. Hopefully you went in soon after your last post and are already in recovery x Quote Link to comment Share on other sites More sharing options...
Ozgirl Posted December 13, 2021 Author Share Posted December 13, 2021 2 hours ago, Wolf87 said: All the best, hope it all goes well! Are you having the repair AND pins coming out? That was the plan - both are bandaged. So seems I went ahead. My father missed the call from the surgeon - 1 Quote Link to comment Share on other sites More sharing options...
Ozgirl Posted December 13, 2021 Author Share Posted December 13, 2021 2 hours ago, Mooguru said: It can probably all be narrowed down to hangry. Good luck One statement was 'im a very busy person, I do nt appreciate my time being wasted like this. 1 Quote Link to comment Share on other sites More sharing options...
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